Echo chambers……

“Some people feel the rain and some people get wet– there is a distinct difference.”

... with seven days left in the month of June, I had three miles to go.

They find the key in the flower pot, but more importantly they find their way.

"Was it fun, nope. Was it miserable, nope. It was what it was...

...a winding narrow trail along the coast of Portugal and Spain, helped put it in perspective, and I have not even arrived.

8th graders Aarna, Ajooni, Ohm, and Sahan reflect on the power of writing

"You learn more from failure than you ever do from success."

Fear is a great motivator. This week, I had my first full infusion to treat my MS. My husband drove me to Johns Hopkins to undergo the five hour infusion. It starts with a wave of pre-meds that are less than appealing, but as the body acclimates– the rest is all about mindset. I started a daily mindfulness practice recently, and being able to disconnect and breathe into my discomfort has proven to be a lifesaver. It calms my central nervous system and quells thoughts of discomfort. Being hooked to this machine for five hours is a reminder that I am not well, but I am doing everything in my power to get well. For those living with chronic illness it becomes part of your life much like taking out the trash, feeding the dog, or paying bills. It is a must do- you ignore it, and you will be in the hospital for much longer than five hours. I used to really resent my disease. It robbed me of time with my boys. It put my work on hold. It kept me from attending various events. It landed me in the hospital time and time again. Since starting my new infusion- which has proven to be a really good fit – I have learned to appreciate my disease in a way I could not until now. When you are surrounded by health, you are reminded of what you do not have, and as a result, you work hard to get there. Every meal. Every walk. Every moment to breathe is a reminder that the day before that thing was unattainable. This morning I walked two miles with neighbors. It was eighteen degrees outside, and I was so thankful to be in the brisk air that I forgot I was cold. Three days ago, I laid in my bed miserable as the steroids wore off. I gained seven pounds in one day with swelling. Today, I am back to my regular weight, and my body felt renewed after the time outdoors. I am finally at a place where I am thankful for my MS. Sounds insane, I know. But if I did not have it- would I take it all for granted? Walking? Traveling? Working? Camping with my boys? Would my lack of struggle make me weaker? More content? Complacent?  Fear is indeed a great motivator, but if I have learned anything through this journey, it is that our thoughts determine our reality. The strongest people I know have walked a difficult path- unpaved, bumpy, nonlinear. It is not their struggle that halts success. Instead, it is the struggle that makes them whole.

Maya Angelou said it best, “You may not control all the events that happen to you, but you can decide not to be reduced by them.”